Support Groups

This page contains links to other World Wide Web sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these Web sites, nor do these sites endorse the information contained here.

Alliance of Genetic Support Groups

National Down Syndrome Congress

1370 Center Drive, Suite 102
Atlanta, GA 30338
Toll-free:800.232.NDSC (6372)
Local: 770.604.9500
Fax: 770.604.9898
E-mail: info@ndsccenter.org
David Tolleson, Executive Director

National Down Syndrome Society

666 Broadway
New York, NY 10012
Toll-free: 800.221.4602
Local: 212.460.9330
E-mail: info@ndss.org

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Toll-free: 800.999.6673 (voicemail only)
Local: 203.744.0100
TDD: 203.797.9590
Fax: 203.798.2291

S.O.F.T. (Support Organization for Trisomy 18, 13, and Related Disorders)

The Compassionate Friends

900 Jorie Boulevard, Suite 78
Oak Brook, Illinois 60521
Toll-free: 877.969.0010
Local: 630.990.0010
Fax: 630.990.0246

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Online Resources of Medical Genetics

Last reviewed: 1/31/2010